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Other resources you can call to see if there is a parent support group
in your area!
Family Resource Center in Region 2
Serving the
areas around Moscow, Lewiston & Grangeville.
Call Lynn
at:
1 (208)885-3743
Family Resource Center in Region 7
Serving the
areas around Idaho Falls, Rexburg & Salmon.
Call Shelly
at:
1 (208) 528-5905
Idaho Parents
Unlimited, Inc. (IPUL)
1 (800) 242-IPUL (4785)
www.idahoipul.org
Idaho Federation of Families for Children’s
Mental Health
1 (800) 905-3436
www.idffcmh.org
Epilepsy Foundation of Idaho
1 (208) 334-4340
www.epilepsyidaho.org
Autism Society of
America
1 (800) 3AU-TISM
www.autism-society.org
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Family Groups Across Idaho
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Many families
in Idaho participate with different kinds of support groups. There are
disability specific groups on Autism or Epilepsy for example, as well as
parent groups organized to provide support across the wide range of
ages, disabilities, family types and needs. Sometimes it feels like
these types of groups come and go, but what are some of the things that
make a group strong?
We talked to
Lorena Freund from Coeur d’Alene about this because she has been part of
the effort in Region 1 to support parents in partnership with the Idaho
Department of Health and Welfare with the parent group: Parents Reaching
out to Parents (PROP).
Q: Lorena, what does it take to get parents to turn out?
A: Some parents don’t get a break or a chance to talk to other
non-judgmental adults, so being able to access 2 hours of daycare or
respite while we meet is really helpful.
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Q: Do you think the daycare really
makes that big of difference?
A: Yes, I’ve had moms come in and just sit quietly for an hour and tell
me this one time per week is all they have to catch their breath.
Q: What kind of schedule is PROP on to get together?
A: PROP now meets in Coeur d’Alene once a week on Wednesdays from
12:30-2:30. We’ve added meetings in St. Maries and Kellogg! St. Maries
parents meet the 1st and 3rd Mondays at 10:30 -12:30 and Kellogg parents
meet every Monday from 2-3:30.
Q: What do you do at these meetings?
A: Well, the Coeur d’Alene meeting is a good example to use. I bring
sandwich fixings and many of the parents also bring something to
contribute. We grab something to eat, introduce ourselves and share what
has been happening in their week. |
Q: That’s it? I thought parent groups were often more formal than that,
lobbying law makers, fund raising and so on.
A: A group can do whatever they want to do. PROP is also a non-profit
organization so we have board meetings and fund raising events too. But
that doesn’t take the place of the scheduled weekly or every other week
meetings when we are there for each other. Some weeks we have 8-10
parents, we’re not just for moms but dads too! My biggest attendance in
Coeur d’Alene was 35.
Q: Wow! That seems like a lot.
A: It was! I try to facilitate the meetings to make sure all parents
participate to the level they want to and that we are focused on
supporting each other. When we get bigger than 35 or so, it can be hard
for parents to connect with each other, but we’ll never turn anyone
away! If your readers are in Region 1, please join us! |
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Twin Falls:
‘ASAP’ Parent Group meets 1st Wednesday of each month, 6pm. Call
Jenny for location (208)308-8480—some child care available.
Coeur
d’Alene, Kellogg, & St. Maries: Questions? Call Lorena at (208)
769-1409. See above for details on meeting times.
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Terreton:
Eastern Idaho Autism Awareness group. Call Cindy at (208)
339-4827 for more details.
Idaho Falls:
Parent to Parent meets every Friday from 12-2 over lunch and
child care is available. Call Amy at (208) 542-0875 for more
information!
Boise:
‘IFAD’ is a group for family of adults with disabilities.
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They share information via email and at
meetings. For details, call Debbie at (208) 229-0555.
If you know of more groups, please call us today
so we can share this with other families! Families tell us the most
helpful thing to them is information shared by other families! |
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If you are interested
in getting a group together in your area, here are some tips we’ve heard
from other groups around the state.
PARTNERSHIPS
In looking for a place
to meet, is there a church or child care location (for example, Head
Start) that might be interested in helping provide an hour or two of
day care? Talk to the team at your local Health and Welfare
developmental disability or infant toddler program to see if there might
be a way to access some funds to help pay for respite care during
meetings. You’ll never know what is you possible until you try
building partners!
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THE 3 B’S
Be consistent: meet on
the same day at the same time. This helps families remember and plan.
Be welcoming: parents
of children with disabilities at any age often feel judged and on the
spot; there needs to be a place where they are accepted.
Be creative: parents
across Idaho have found ways to create groups that provide so much to
the parents who attend. If you want to get a group together in your
area, you can do it!
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KEEP
IT SIMPLE
If you are focused on
providing support to parents, they will help you expand your efforts to
match the vision of the group. For example, your group might want to
work with policymakers on state or federal funding. Or, they might want
to create a resource in your town, like an accessible playground. Maybe,
your group will be focused on getting some social events going. All have
value!
Call us at (800)
393-7290 or contact the organizations listed to the left if you’d like
some ideas about creating a group near you!
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